STUDY ON QUALITY OF LIFE AMONG PATIENTS WITH PARKINSON’S DISEASE AND THEIR CAREGIVERS

Viết Lực Trần , Ngọc Tâm Nguyễn, Thị Thu Hương Nguyễn

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Abstract

Objectives: To describe characteristics of the quality of life (QoL) among patients with Parkinson's disease and their caregivers and to explore some related factors to their QoL. Subjects and methods: A cross-sectional descriptive study on 50 patients with Parkinson's disease 50 caregivers of patients with Parkinson's disease at the National Geriatric Hospital. These subjects were interviewed according to a medical record. The QoL of Parkinson's disease patients was assessed with the PDQ-39 questionnaire - The Parkinson's Disease Questionaire; the QoL of caregiver was assessed with the PDQ-carer: The Parkinson's Disease Questionaire. Results: The results showed that the total score of PDQ-39 was 36.0 ± 20.18. According to the PDQ -39, the average score of walking and daily activities was two of the highest, corresponding to the lowest QoL of patients with Parkinson's disease. Social support scores had the lowest mean value (29.50 ± 21.57) and were associated with psycho-behavioral symptoms of patients with Parkinson’s disease. For the QoL of the caregiver, the total PDQ-Carer score was 29.7 ± 17.01. It was associated with many factors such as age, depression-anxiety-stress, and psycho-behavioral symptoms of the patient. Social and personal functioning and anxiety-depression were the two areas with the lowest QoL. Conclusion: Both patients with PD and their caregivers showed the poor quality of life. QoL was associated with neuropsychiatric symptoms of the patients. Interventions to improve QoL for patients and carers are needed.

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References

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